Calling young adult patients ages 18 to 35! We want to hear from you about how you use AI chatbots and companion tools, your opinions about the software, and your feedback on the safety of generative AI tools.

In this short survey, we are asking for you to share your experience with different types of generative AI, including:

AI Chatbots: general-purpose tools, such as ChatGPT and Claude, which are built to answer questions and assist with tasks.
AI Companion Tools: tools that use AI to simulate personal relationships and offer emotional support, such as Replika and Character.AI.
AI Tools for Mental Health: tools such as Woebot, Wysa, and Headspace Ebb, which are specifically designed to provide mental health support.

We will ask how you have used different types of generative AI tools, what you like and dislike about them, how you feel about the information that AI tools have given to you, and what kind of resources would help you feel more comfortable interacting with AI tools safely.

Taking part is voluntary and takes about 5 to 10 minutes. You can skip any question you do not feel comfortable answering, and you can stop at any time. Several questions invite you to write in your own words — when you do, please leave out names, locations, diagnoses, contact information, or anything else that could identify you or someone else.

All responses are anonymous and will be used to help Generation Patient understand how young adult patients are using and feel about generative AI. We will use this information to guide us as we begin to develop an evidence-based safety guide for young people with chronic conditions on how to interact with AI companion tools.

If you have any questions about the survey, please email Sarah Blahovec, Project Consultant, at sarah@generationpatient.org. To learn more about Generation Patient’s work to strengthen oversight of AI companion tools, visit generationpatient.org/ai-companion-tools.

About you

1. Are you between the ages of 18 and 35?

Yes: 18–24 Yes: 25–35 No

Please select an answer.

2. Have you ever used any AI chatbot, companion, or mental-health tool?

Yes No

Please select an answer.

3. Do you identify as having a chronic or congenital condition?

Yes No

Please select an answer.

How you use AI tools

4. Which types of AI tools have you used?

Select all that apply.

General-purpose chatbots — ChatGPT, Claude, Perplexity, Gemini, Microsoft Copilot AI companions — Replika, Character.AI, Kindroid, Pi, Nomi AI mental-health tools — Woebot, Wysa, Youper, Headspace Ebb, Ash by Slingshot, Liven Other (please describe)

Please select at least one option.

5. What have you used AI tools for?

Select all that apply.

School, education, and learning Work Companionship and conversation Mental-health support Organizing my life Health tasks — preparing for appointments, researching conditions, understanding symptoms or medications Creativity — writing, art, music General advice and troubleshooting Other (please describe)

Please select at least one option.

6. Of those, what’s your primary reason for using AI tools?

Select one.

School, education, and learning Work Companionship and conversation Mental-health support Organizing my life Health tasks Creativity General advice and troubleshooting Other (please describe)

Please select an answer.

7. How often do you use AI tools?

Select one.

Rarely — a few times a year A few times a month At least weekly Daily or almost daily

Please select an answer.

Your likes and dislikes

Health information & accuracy

11. Have you shared details about your health or condition with an AI tool?

Yes No Not sure

Please select an answer.

12. Have you used an AI tool for anything related to your own condition?

Yes No Not sure

Please select an answer.

13. Has an AI tool ever given you health or medical information that you acted on (for example, about symptoms, medications, or whether to see a doctor)?

Yes No Not sure

Please select an answer.

Briefly, what happened — and did it turn out to be accurate?

Please do not include names, locations, diagnoses, contact information, or other details that could identify you or someone else.

14. How accurate is the information AI tools give you?

Select one.

Very accurate Somewhat accurate Neutral / mixed Somewhat inaccurate Very inaccurate

Please select an answer.

15. How often do you fact-check information an AI tool gives you?

Select one.

Never Rarely Sometimes Often Always

Please select an answer.

16. When you fact-check, how do you usually do it?

Select all that apply.

Search engine / other websites Ask another AI tool Ask my doctor or care team Ask family or friends Check the original source the AI cited I don’t fact-check Other (please describe)

Please select at least one option.

17. Have you discussed health-related information an AI tool gave you with anyone?

Select all that apply.

Family Friends Colleagues or classmates My doctor or care team No, I haven’t discussed it with anyone Other (please describe)

Please select at least one option.

Safety & what would help you

18. Do you have any safety concerns when using AI chatbots or companions?

Select all that apply.

Accuracy / being given wrong information Privacy and how my data is used Getting medical or mental-health advice that isn’t safe Becoming too emotionally reliant on the tool Feeling like the tool is designed to keep me hooked or engaged I don’t have safety concerns Other (please describe)

Please select at least one option.

How do you deal with those concerns?

Please do not include names, locations, diagnoses, contact information, or other details that could identify you or someone else.

19. How did you mainly learn to use AI tools?

Select one.

Figured it out on my own Friends or family School or a teacher Work or a colleague Social media, videos, or online articles The tool’s own instructions or tutorials Other (please describe)

Please select an answer.

20. Generation Patient is building an evidence-based safety guide for young people with chronic conditions on using AI tools. Which topics would be most useful to you?

Select up to 3.

The differences between AI tool types (chatbots, companions, mental-health tools) How AI tools collect, use, and retain your data Keeping your private and health information safe Recognizing when a tool is designed to keep you engaged — for example, by flattering you or always agreeing with you Why AI tools can feel like a friend — and keeping healthy boundaries with them How to research and verify what an AI tells you Protecting your mental health when using AI Using AI safely for health and medical questions Other (please describe)

Please select between 1 and 3 options.

21. What kind of resources or information would make you feel more confident using AI tools safely?

Please do not include names, locations, diagnoses, contact information, or other details that could identify you or someone else.

Please answer at least one question before submitting.

💚

Thank you for your interest!

This survey is for young adults ages 18 to 35, so we’re not able to include your responses this time.

To learn more about Generation Patient’s work on AI companion tools, visit generationpatient.org/ai-companion-tools.

🎉

Thank you for sharing your experience!

Your anonymous responses will help Generation Patient develop an evidence-based safety guide for young people with chronic conditions on interacting with AI tools.

Questions? Email Sarah Blahovec at sarah@generationpatient.org.

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Young Adult Patients: Share Your Experience with AI Chatbots & Companion Tools

Thank you for your interest!

Thank you for sharing your experience!