Roundtable on Engaging Adolescents & Young Adults With Chronic Conditions in Patient-Centered Comparative Effectiveness Research for Peer Support Interventions
The Roundtable on Engaging Adolescents & Young Adults With Chronic Conditions in Patient-Centered CER for Peer Support Interventions is a multi-stakeholder learning community of young adult patients, medical professionals, and researchers who meet monthly to engage in discussions on the existing literature, current challenges, and future opportunities to develop patient-centered research on peer support for young adults with chronic conditions. The ultimate goal of this project is to build capacity to engage in patient-centered research to assess peer support as a crucial intervention for young adult patients and strengthen the impact of future peer-support research.
This roundtable is supported by the Eugene Washington PCORI Engagement Award Program, an initiative of the Patient-Centered Outcomes Research Institute (PCORI). You can learn more about the details of our project here.
Guidance Document for Researchers
To strengthen the impact of future peer-support research, our roundtable members created the Guidance Document to guide research on cross-disease peer support for young adult patients and provide important considerations for developing and executing studies about peer support for this population.
During our two-year Roundtable, we reviewed the existing literature on peer support interventions for young adults with chronic conditions. This Guidance Document is a compilation of our insights and learnings and includes our recommendations for strengthening future research on peer support interventions.
We hope researchers will use the considerations laid out in this document to help guide the development and implementation of future studies on peer support interventions for young adult patients.
View our Guidance Document here!
To cite this work/resource: Reed, S., Kelekian, R., Dave, S., Melton, K., Edwards, H., Jayswal, N., Hsu, C., Betz, C. 2025. Guidance Document for Patient-Centered Research on Peer Support for Young Adult Patients. Generation Patient. Online. Accessed [insert date accessed]. [https://generationpatient.org/peer-support-roundtable]
Companion Checklist
This checklist functions as a practical tool for researchers to reference throughout the research process, distilling essential insights, best practices, and recommendations from our comprehensive Guidance Document on Patient-Centered Peer-Support Research for Young Adult Patients.
View our Companion Checklist here!
To cite this work/resource: Reed, S., Kelekian, R., Dave, S., Melton, K., Edwards, H., Jayswal, N., Hsu, C., Betz, C. 2025. Companion Checklist for Patient-Centered Research on Peer Support for Young Adult Patients. Generation Patient. Online. Accessed [insert date accessed]. [https://generationpatient.org/peer-support-roundtable]
Peer-Support Toolkit
As part of this roundtable, we wanted to create a resource that would help other patients or community-led organizations create their own peer-support programs. We developed this toolkit to share our processes and recommendations for creating, facilitating, and sustaining community-led peer-support groups for AYA patients.
View our Toolkit here!
To cite this work/resource: Kelekian, R., Jayswal, N., Reed, S., Dave, S. 2025. Peer-Support Toolkit: Creating Spaces for Young Adults with Chronic Conditions. Generation Patient. Online. Accessed [insert date accessed]. [https://generationpatient.org/peer-support-roundtable]
Proceedings Document
The Proceedings document is a compilation of two years of monthly roundtable discussions. The document includes summary discussions that review recent studies, identify methodological challenges, and emphasize the importance of clear definitions, patient involvement, and cultural sensitivity in peer support research.
View our Proceedings here!
To cite this work/resource: Reed, S., Kelekian, R., Dave, S., Melton, K., Edwards, H., Jayswal, N., Hsu, C., Betz, C. 2025. Companion Checklist for Patient-Centered Research on Peer Support for Young Adult Patients. Generation Patient. Online. Accessed [insert date accessed]. [https://generationpatient.org/peer-support-roundtable]
Generation Patient Roadmap
The Roadmap outlines Generation Patient’s strategic plan for advancing patient-led, patient-centered comparative effectiveness research (CER) on peer support interventions for young adults with chronic conditions. It details organizational goals, barriers, and actionable plans to expand peer support programs, foster academic partnerships, train young adult patient leaders, and disseminate resources to strengthen the evidence base and impact of peer support in healthcare.
View our Roadmap here!
To cite this work/resource: Reed, S., Kelekian, R., Dave, S., Melton, K., Edwards, H., Jayswal, N., Hsu, C., Betz, C. 2025. Companion Checklist for Patient-Centered Research on Peer Support for Young Adult Patients. Generation Patient. Online. Accessed [insert date accessed]. [https://generationpatient.org/peer-support-roundtable]