We are thrilled to announce we have been awarded a grant from the Lucile Packard Foundation for Children's Health to support an initiative focused on identifying current systemic challenges and opportunities for young adults living with chronic and rare conditions!

Over the next four months, Generation Patient will convene a series of meetings with both patient and medical advisory boards. These advisory boards will meet up to five times to explore a wide range of systems-level issues impacting young adults (aged 18-30) living with chronic and rare conditions. Through these discussions, the boards will identify 6 to 8 key themes that highlight the most pressing system challenges and opportunities for our young adult patient community. The outcomes of these meetings will shape a series of Roundtable discussions scheduled for next year, where these critical issues will be further explored in depth.

Patient Advisory Board (PAB) Members

Rose Keller, Bachelor’s in Political Science and Government (LinkedIn)
Maanya Tarnal, Undergraduate Student in Public Health (LinkedIn)
Kiran Rachamallu, Bachelor’s in Public Policy and Biology (LinkedIn)
Grace Shults, Bachelor’s in Psychology (LinkedIn)
Anna Ball, Master’s of Public Health (LinkedIn)
Rachel Litchman, Bachelor’s in Sociology and Gender/Women’s Studies (Bio)

Medical Advisory Board (MAB) Members

Jennifer Disabato, DNP, CPNP-PC, AC (Bio)
Rita Nathawad, MD (Bio)
David Rind, MD, MSc (Bio)
Susan Shanske, MSW, LICSW (Bio)
Michelle Wright, LCSW, MSW (Bio)

Generation Patient has hosted a variety of roundtables with different structures and models. Our roundtable initiatives ensure that young adult patients are at the helm of discussions that directly influence research, policy, and systems-level solutions that impact our health and quality of life. For more information on our other roundtable series, please visit https://generationpatient.org/roundtables.