The Evolution of our Summits

In October of 2017, we hosted our first Health Advocacy Summit in Indianapolis, Indiana. This event brought together 14 attendees and six speakers from various demographics for a day of advocacy and leadership development. By 2020, we were planning to host summits in Indiana, Texas, California, Massachusetts, Illinois, and New York. Unfortunately, Covid-19 forced us to cancel all of our in-person summits for both 2020 and 2021.

However, the global pandemic allowed us to pursue other opportunities, such as our International Virtual Summit, the largest virtual event created specifically for young adults with chronic and rare conditions. This event is unlike anything we’ve seen before and has allowed us to reach young adult patients across the globe.

Moving forward, we will continue to host our International Virtual Summit annually and focus the development of our in-person summits within rural communities, where access to the internet, resources and information is limited.